When Odapus’ve got lupus, throughout his life he will co-exist with this disease. However, lupus can now be controlled, provided the patient and routine patients taking the drug. The attitude of patience is needed for the immune cells return to normal and lupus symptoms did not show up anymore. Patient taking the drug also be a determinant for Odapus can get well soon, “said dr. Cecilia.

Importantly, he added, first identify the type of lupus that affects. You do this by observing the symptoms and the affected organs. To be sure, blood tests are not necessary. Because, different organs are attacked, also different handling. For example, if the kidneys are attacked, then that person will be treated as a kidney patient.

“Lupus attacked my blood flowing through the body. Because the doctor diagnosed late, I could go back and forth in the hospital. Because of late diagnosis as well, so I had to undergo a long and painful treatment. Imagine, every day of my belly button should be injected with certain drugs for 10 consecutive days. I also have to take medication to 10 eggs once a drink. But, as my condition improved, the severity of treatment was reduced. Now, I’ve been ‘at peace’ with lupus, “said Aya.

What happened to Aya could have been avoided or minimized if lupus is detected before complications occur. As experienced Lusiawaty (31). When he realized he had suffered joint pain similar to that experienced by her mother – who suffered from lupus -; he expects the same disease also attacked his body.

“Both my legs had also continued to swell. Just like my mother had ever experienced. So I immediately went to the doctor. Sure enough, the cell lupus attacking my joints. Fortunately, although quite painful effects of the drug, because fast is detected, the adverse effects – such as organ complications – I was not natural. In fact, now I was able to escape the drugs and could move back, “he explained.

In addition to medications, emotional stability also controlling the disease lupus. That is, changes drastically emotions can trigger the activation of cells of lupus. If there is stress, lupus will be more aggressive attack so Odapus can not move normally.

The problem, Odapus usually experience physical changes, such as fingers and calves are swollen, rounded face (moon-face), severe pain in the hand. All that makes a lot Odapus despair. As a result, emotions easily explosive, so that the cells were kept active lupus.

“Therefore, as Odapus, I should always control their emotions, manage stress well, and always think positive. Support the people closest can also be a panacea. Because, I so do not feel alone. Join and sharing with other Odapus in Indonesia Lupus Foundation also makes me more convinced to get rid of this disease, “said Aya, optimistic.

The same thing also asked Louise. “In addition to controlling stress, I also must be sensitive to changes in the physical condition of the body. If I am tired, I immediately relax. I do have to recognize the ‘alarm’ own body, to know when to rest, “he added.

Indeed, the current treatment of lupus is more advanced. “But, still, have the control to the doctor regularly, maintaining a healthy lifestyle, and managing emotions well. Only in ways that you can make friends with lupus, “dr. Cecilia recommend

Lupus or systemic lupus erythematosus (SLE) is an inflammatory disease (inflammation), chronic attacks various parts of the body, especially skin, joints, blood, and kidneys. “

Normally, the body’s immune system produces proteins called antibodies. The function of antibodies to fortify the body against viruses, and bacteria (called antigens). If the function fortify yourself (autoimmunity) is disturbed, then the immune system loses the ability to distinguish between antigen with tissue / cell body itself. This is what happens in people with lupus.

Furthermore, the immune system to form autoantibody, the term for the type of antibodies that actually attack the body’s own tissues. Autoantibody is then used to form an immune complex systems, ie systems that lead to inflammation, injury, or infection of the tissues and cells, and cause pain to the sufferer. “In short, when compared with the disease of HIV / AIDS, which lead to decreased immunity, then in patients with lupus, the immune system would become wild and attack ourselves,” said dr. Cecilia.

Unfortunately, many people think of lupus as a rare disease. The truth, the number of patients increasingly lot. Moreover, according to data from the Lupus Foundation of Indonesia, in recent years continued to increase the number of Odapus (people with lupus). Increase about 17% each year.

If not detected early, the disease is the same fraction of ti dangers of cancer, coronary heart disease, and AIDS. The difficulty, the cause of the disease is not known. So, how to prevent it was not yet known. According to dr. Cecilia, until now the experts are still figuring out the cause of the emergence of lupus.

Although women who have a family history of lupus disease are at higher risk experiencing the same disease, lupus in fact can not always be said to be a hereditary disease. Until now, the prevalence of lupus patients due to genetic factors only reached 10%. Factors that very act is suspected environmental conditions, such as sun exposure, stress, effects of some drugs, and viruses.

Although it was thought the disease is triggered because of the wrong lifestyle, including eating unhealthy foods, dr. Cecilia admitted less convinced of the truth. Aya was agreed. “Before I was diagnosed, I was pretty healthy lifestyle, really. In fact, I rarely eat junk food, “he said.

So, why are more women sufferers? According to dr. Cecilia, lupus disease is also associated with the dominant hormone estrogen in women. Similar to stress, excessive estrogen production also affect the immune cells of the body.

When asked if it is Lupus? maybe the answer will be very varied, because species vary. Lupus or SLE (systemic lupus erythematosus) is a chronic autoimmune disease, when antibodies attack one’s own body tissue. It was formed anti excessive and misdirected; anti should work against germs, bacteria or foreign substances that enter the body but the body’s anti Odapus even damage the body’s own organs. Is the Lupus Foundation of Indonesia (YLI), which has built awareness of Odapus for approximately 11 years in Indonesia.

LIF is composed of the Odapus this seems to be a focus for the hopes for the Odapus, will Odapus Concern is growing on the basis of similarity of fate. YLI more Odapus assess the difficulty to perform the treatment in Indonesia due to the high cost of treatment. ”About 10,114 Odapus in Indonesia have been listed in the LIF, but problems were encountered is that the LIF has not had an extensive network in the area so there are many other lupus patients that have not been recorded and handled,” said the chairman of Yayasan Lupus Indonesia Tiara Savitri.

Tiara said LIF in cooperation with third parties helping Odapus treatment for poor families, because SKTM (certificate can not afford), Assurance (health insurance) have not been able to meet the health care Odapus.

“Even if could definitely be longer, so we took the initiative to provide health services for Odapus it for free. We help initial treatment, after which treatment is delivered in SKTM and Jamkesmas,” said Tiara then suggested that LIF began earlier this year to accommodate patients. According to Tiara, the current mindset of lupus patients is much better than before and has experience of advanced k in terms of thinking, emotional, motivational.

Latest developments Lupus
Patients with Lupus in Indonesia based on the data there are about 10 114 LIF Odapus with age range between 15-45 years 90 percent of whom are young women and 10 percent of the rest in pain by men and children.

The cause of Lupus is a combination of several faktorketurunan, environmental factors: Sunlight, emotions, and autoimmune diseases (aCL syndrome). So how lupus treatment? Prof.dr Zubairi Djoerban Spdp KHOM (hematology and oncology consultant SLE) who also coaches foundation lupus lupus Indonesia says it may vary for one Odapus to other Odapus, originally Odapus given corticosteroid drugs, and then require additional heparin, sometimes also need additional methotrexate . The dose of steroid was started with high doses and then gradually reduced doses.

“Right now there is new evidence that there is new research cheap drug / antimalarial that could reduce the death rate Odapus,” said Djoerban.

Odapus also require lifestyle adjustments in order not often recur. Odapus must be able to manage themselves, such as adequate rest while it is a relapse, is working normally when SLE was well controlled, avoid (minimize) exposure to the sun, regulate diet and nutrition. No less important is to manage stress.

Djoerban Metilprepmilsolon is also said that the generic drug “cheap” for Odapus and very affordable.

Odapus death rate has dropped dramatically now that is about 40 percent but the number of people living increases each year.

“It takes vigilance of physicians to address this because many doctors are not yet understood and still under diagnosed so this is like an iceberg phenomenon because it found only 10 thousand, but in reality there are still hundreds of thousands of others,

Lupus is a disease that attacks the immune system changes individuals, which until now unknown cause. This disease arise due to dysfunction of the immune system. In one’s body contained antibodies that attack the source function disease to be included in the body. Uniquely, this lupus antibodies formed in the body appears excessive. As a result, the antibodies actually attack the cells of a healthy organ tissue.

The disorder is called autoimmunity.

This excess antibodies, can go into the entire network with two
ways:.

• First, antibodies can directly attack this strange body tissue,

as in red blood cells that cause the cells will be destroyed.
This is what lead to the sufferer or red blood cell deficiency
anemia.

• Second, antibodies can be joined with antigens (substances stimulating formation

determine antibody), forming a bond called a complex imun.Gabungan
antibody and antigen flow with blood, until caught in development
capillary blood vessels will cause inflammation.

Under normal circumstances, this complex will be limited by inflammatory cells
(Phagocytes) However, in abnormal circumstances, this complex can not
properly restricted. In fact, inflammatory cells had increased a lot while
secrete enzymes that cause inflammation around the complex.

As a result, the inflammatory process will be prolonged and will damage
organs and interfere with its function. Furthermore, it will be seen
as symptoms of the disease. If this happens, then in the long term
organ function will be disrupted.

Generally, people with lupus experience symptoms such as. Easy skin
scorched by the sun and the incidence of digestive disorders.
Symptoms generally sufferers often feel weak, fatigue
excessive, fever and sore. This phenomenon is mainly observed in
active period, whereas during remission (inactive) disappeared.

The body has immunity to attack the disease and maintain permanent healthy. However, what would happen if it attacks the immune organs healthy body. Lupus diseases allegedly associated with immunological system
excessive. The disease is quite mysterious. The doctors diagnose sometimes confused
this disease. His name is a little unique, LUPUS.

Lupus is Latin for “coyotes. ” This term began to be known about a century ago. Initially, this disease thought to have skin disorders, in the form of redness around the nose and cheek. Red blotches on the face and arms, heat and fatigue
prolonged, hair loss, swollen joints and often arise sprue. This disease not only attacks the skin, but can also affects nearly all organs in the body.

The symptoms of the disease known as Systemic Lupus Eritomatosus (LES) aka Lupus. Eritomatosus means reddish. whereas systemic widespread significant control every aspect of the organs. The term is called LES
or lupus.

Still lay The number of people with lupus is not too much. According to literature data, in United States found 14.6 to 50.8 per 100,000. In Indonesia can be found around 50,000 sufferers.

As disclosed in the booklet Care for Lupus (Duha Shams), Lupus is a general designation of a disorder called Lupus Erythematosus.
In simple terms, a person can be said to suffer from the disease Lupus Erythematosus as her body becomes allergic to itself. Lupus is a term from the Latin word for wolf. This is due to this disease generally have a red rash butterfly rash or butterfly-shaped in a similar cheek on the cheek Wolves, but white.
This disease in medical science called Systemic Lupus Erythematosus (SLE), namely when the disease has attacked the entire human body or internal system. In the science of immunology or immunity, the disease is the opposite of cancer or HIV / AIDS. In lupus, the body becomes overreacting to the stimulus of something foreign and making too many antibodies or proteins such that even directed against the body’s own tissues. Thus, referred to as an autoimmune lupus disease (diseases with excessive immune).
Types of Lupus disease has three forms, the first of cutaneous lupus, often called discoid which affects the skin. Second, Systemic Lupus Erythematosus (SLE), which attacks the body’s organs such as skin, joints, lungs, blood, blood vessels, heart, kidney, liver, brain, and nerves. Third, the Drug Induced Lupus (DIL), arising from use of certain drugs. After the use is stopped, symptoms will generally disappear.
and usually odipus (people living with lupus) will avoid things that can make the disease relapsed with:

• Avoiding stress
• Make sure to avoid direct sunlight
• reduce the excessive workload
• avoid the use of certain drugs.

odipus can  observer on this disease, a specialist in internal medicine hematology consultation, Rheumatology, kidney, hypertension, allergy immunology, if lupus can be overcome, treatment with regular, regular medication that is given by a physician (which is usually taken for life) , odipus will be able to live like normal people.

Lupus is an autoimmune disease whereby the immune system attacks the body’s own tissue and organs, including kidneys, heart, lungs, brain, blood and skin. Among the consequences of this disease, which affects more than 5 million people worldwide, lupus can cause arthritis, kidney failure, chest pain and rash.

In this study, patients were treated with 10 milligrams of belimumab, which is marketed under the name “Benlysta” during 53 weeks, after which it was found that 43.2 percent of patients had an improvement in their symptoms without, therefore, worsen some of the organs affected by the disease. In patients who received placebo, improvement was detected in 33.8 percent of cases.

For Professor at the University of Chicago and an author of the research, Tammy Utset, clinical results were “spectacular” and encouraged to continue studying the effectiveness of this drug and improve its security because in 26.8 percent patients serious side effects were detected.

For 50 years there is no approved specific treatment for this disease, as stated the president of the Lupus Research Institute, Margaret Dowd, who highlighted the turn these results may give the research in this field.

In fact, this second trial the manufacturing companies “Benlysta” being carried out has been requested by the American Drug Agency (FDA) to evaluate a possible endorsement.